This past Wednesday, Jim and I took Timmy to the Children's Hospital in Philadelphia for a full review of his Spina Bifida. He was a real trooper and barely cried at all. He seemed to like having Baba and me to himself all day (Jake was with Uncle Mike and then in school). The tough news came from the urologist that did a study of Timmy's bladder. The nerve damage shows that Timmy does not have great control over his bladder and bowels. We will have to soon start a regiment of helping through catheterizing and high fiber. There is no surgery to correct this at this time. Surgeries to reroute nerves are still under review.
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| tired out on the way home |
The good news is that Timmy's lower leg and foot muscles seem barely affected or normal. He is able to run and jump and climb like other two year olds. While I am grateful for the good news, I am sad for how his life will be affected by the nerve damage. We have a lot to learn in the next months and years of his life. We want to give him every advantage possible.
Sweet boy...what a little trooper. It is understandable that it's hard to balance the relief for some positive news with the heartache over not knowing how to best help your child. I'm glad you were able to get solid information so quickly after his homecoming and I pray that you will know how to go forward. He's got a gooooood mamma! xo
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